Do you think your social media profiles represent your life
with precision? Could a stranger look at your profile and
determine that you have fibromyalgia simply by browsing
for your photos?
Most would say that the answer is no.
But, New York comedian Kayla Barry was recently denied a request for disability fibromyalgia and
chronic fatigue syndrome because it,s apparently didn’t seem like it Sick enough in several photos she posted online.
Barry explains in a Tumblr post (where she is known as Fibro-
Larious) that the doctor who was hired to make the decision about his
claim used photos posted on his Twitter account to determine if she was really ill.
He hasn’t tweeted in nearly a year, and the photos referenced in the
document that denies his claim, that showed his smile and his laughter
published between one and two years ago.
In his Tumblr post, Barry included an excerpt from the document: “The person represented in most of these publications seems being a young woman who is engaged in life activities, awake, smiling and alert . “
“They don’t seem to represent an individual who looks chronically sick”.
These images, Barry explains, are not accurate representations of his life.
As anyone using social media can attest, which We publish does not paint the entire image.
“People always use social media to show the BEST
moments of their lives, even if they are not the whole truth, “he says in his
And like many with fibromyalgia and other chronic diseases, Barry
she keeps many of her struggles to herself.
” I don’t share the three days I have to sleep to recover from a set stand-up comedy. I do not share the intense pain that my body suffers after of walking through Central Park for a day, ”he writes.
“They are called invisible diseases for a reason. People with chronic diseases can look completely normal.
The disease is hidden from view. “
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