Fibromyalgia – We were left with a broken body ”was one of the words that touched me the most as I listened to my mother (Claudia) tell me about this mysterious disease that even doctors could not describe. “Sometimes it becomes unbearable: generalized discomfort, aversion to cold, intense heat, rubbing of clothes…”, he explains, and my eyes fill with tears because there is no real reason, nor a cure. .
Fibromyalgia: A Silent Disease
“You want the magic pill to seem to stop suffering, but it doesn’t appear and you become frustrated, your condition worsens and the anxiety increases rather than disappearing,” Claudia said.
What is the reason? Because it seems to be purely and exclusively emotional. “The cause of this condition is still unclear, it is suspected that fibromyalgia occurs as a result of extreme sensitization of the nervous system or of hereditary origin, resulting from physical or emotional injury, changes in areas of the brain responsible for pain or infection ”, says Dr Ernesto Crescenti (MN: 50.776), physician, scientist and director of immuno-oncology facility.
“The American College of Rheumatology has described the condition of fibromyalgia based on a history of prolonged pain of at least 3 months, associated with weakness of 11 or more sensory points in 18 ″, explains Dr. Gonzalo Yamauchi . Specialist in family medicine and musculoskeletal medicine.
“Pain can be expressed in multiple ways: intermittent and continuous, burning, cutting or penetrating,” Yamauchi describes.
“Since 1992 this disease has been recognized by all international medical organizations and by the WHO,” said Dr Gonzalo Yamauchi.
“The most common areas are the lumbar region, neck, elbows, knees, thighs and legs. The pain usually gets worse with cold, infection, pressure, and lack of sleep. Another symptom commonly associated with pain is fatigue. And chronic fatigue ”, lists Yamauchi without reason to justify it.
That also includes sleep disturbances, sleep problems, or regular interruptions to nighttime sleep. Headache, abdominal discomfort, paraesthesia, numbness and dizziness, as well as a feeling of stiffness in the body (usually in the morning).
“The progression of the disease is gradual and will last over time, but with early diagnosis, accurate data and an effective treatment strategy, the prognosis can be improved,” said Dr Gonzalo Yamauchi.
“This condition, which mainly affects women aged 20 to 50, causes a sensation of pain and hypersensitivity that affects the whole body,” Crescenti also emphasizes.
“It’s very difficult to cope with this disease,” mom tells me, and with Fundación INECO they realize that “it’s typically a burden on the community and the climate, and that, in fact, for the client. fibromyalgia, because the family member does not understand why this is happening to him. “Aware that there is an inherited genetic strain, it is important to psychoeducate the patient and the family to understand them and be able to support them,” suggests Dr. Evangelina Melgar, psychiatrist and coordinator of the INECO fibromyalgia clinic.
Tips For Living With Fibromyalgia
- Aerobics, Endurance Workouts – strengthening and stretching or mobility exercises, relaxation techniques to relieve muscle tension and anxiety, and educational programs that help you understand and treat fibromyalgia.
- It is suggested to improve the quality of sleep and mood through psychotherapy or pharmacological treatments.
- Several fibromyalgia drugs help improve hypersensitivity, but there is no clear indication for a single drug. The choice is left to the doctor in charge of the treatment.
- Acceptance of the disease: this is one of the more complicated parts, but the earlier the process is completed, the more comfortable the patient will be able to live. This will include suffering which can be alleviated but will always be there.
- Be able to convey what you feel: the client must be able to communicate what is happening to them to those close to them. It can be very helpful to accompany yourself to the doctor, not only so that the instructions can be understood by another patient, but because the more you know about the condition of the infection, the more you will understand and support.
- Pay attention to mood swings: Mood is influenced by fibromyalgia. Behavior changes, premature responses, lack of humor, pessimism, apathy are common. The patient has to do a work of knowing himself, because the more he is aware of his way of thinking and of the duty he has of his mind, the easier it is to control it.
- Knowing the body: Knowing how to interpret the body’s signals is essential for the disease to coexist better.
- Exercise: Physical activity is recommended, at least moderately. It will help to strengthen muscles and joints and to resist pressure.
- Be careful, fibromyalgia is no reason to do what seems easy and hurt yourself. The more we help the body to live healthier.
- Meeting with other people: going to meetings or organizations can be a good space to discuss what is going on, find help, help others and thus form a network of empathy and mutual assistance .
Fibromyalgia What Are Rare Diseases?
Rare diseases, such as fibromyalgia, affect a small percentage of the population and present with different symptoms and different diseases, depending on the condition and characteristics of each patient.
Rare diseases range from 5,000 to 7,000, which can alter physical ability, mental abilities, or sensory and behavioral attributes. Most are chronic and degenerative diseases, 65% of which are severe and disabling.
In the context of clinical care, it has been found that the majority of patients who suffer from it usually have an emotional problem or experience a situation of anxiety or stress. These feelings accumulated over time have serious repercussions on daily life and the growth of health.
Detection of these diseases can be subtle and slow over time. In some cases, the diagnosis may be delayed for several years, as the doctor will usually consider the symptoms to be another disease and try to improve them with traditional treatments.
On the other hand, in the absence of symptomatic signs, it is normal for the patient to experience more acute phases and other periods of remission. The treatment will only be fine-tuned if the patient continues the symptomatology, which can have several effects, such as worsening the disease or even endangering your health.